
Hello to every one who visits this site.
I would like to say THANK YOU for your visit.
This site is dedicated to our daughter :

Please Feel Free to Light a Candle
or Write a Tribute to Show You
Were Here on her site (:


KAILEYS STORY
We found out that we were having another baby on June 21, 2004 by a home pregnancy test. Trenton our son was 16mths at the time. I went to the doctor on July 5, 2004 and found out i was 12 wks and our due date was going to be February 18, 2005.
Our son's birthday is three days before that date, we were very excited...Every doctor visit for 2mths went very well, until September 29, 2004 (a date that will never leave my mind).
We went in for a doctor visit that day, thinking that we would find out the sex of our child.

I got up on the ultrasound table excited. As the Ultrasound Tech was looking over the baby she seemed to have a great deal of concern in her expressions. She told us that she was going to get the doctor. As she returned with the doctor he seemed saddened by what he had to tell us.
We were told that the baby has fluid in its abdomen that isn’t supposed to be there. He said that is was most likely Edema, which is swelling of the skin. He told us that we needed to go see a specialist in St. Louis, Missouri.
We went to St. Louis on October 6, 2004. After numerous ultrasounds the specialist told us that the baby had a VERY RARE ILLNESS called HYDROPS FETALIS: Gross edema (swelling), usually with anemia, of the fetus. It can be due to Rh blood group incompatibility, in which antibodies crossing the placenta from the mother destroy the red blood cells of the fetus. It can also be caused by a lethal form of the genetic disorder thalassemia, alpha thalassemia, in which alpha-chain polypeptides needed to make fetal or adult hemoglobin are not produced.
Some women have inutero surgerys and it saves the babies, but Barnes Jewish Hospital in St. Louis Missiouri does not offer inutero surgerys. Nothing could be done.
We were devastated our hearts broke. We were told a termination would be for the best, but if we chose to go on with the pregnancy that I would end up going through preterm labor and that the baby had little chance of survival if born before 34wks.
Termination never entered my mind! I was going to give my baby a chance that the doctors didnt want to give it, there was no way that I couldn't.
When i told them of my decision to go on with the pregnancy. They asked if we wanted to know the sex of the baby and we said yes. I had an amniocentesis done to determine the baby's sex and it came out that it was going to be a GIRL!!

We were brought to pure happiness again because that meant that she was going to be the first granddaughter and niece on my husbands’ side for 14 years.
From October til the week after Thanksgiving of 2004 i was at my regular doctor every week and in St. Louis every other week. Kaileys ultrasounds always showed more fluid. The specialist did numerous test for all kinds of diffrent things that may cause HYDROPS FETALIS but all her test would come back negitive of any cause. The only determination they came to was that my rh factor is negitive and was fighting her off like an infection in my body.
I went in to preterm labor two days after my 18th birthday on December 3, 2004.

Our daughter was born by emergency c-section (ten weeks early) at 11:02 p.m. weighing in at 8lbs, 3ozs (with out the fluid she weight 4lbs, 6ozs) and 18inches long in Marion, Illinois.
I am told that she screamed, but they put me out so i was out for her birth. They drained fluid off of her to get her some what stable because She had to be air lifted to St.Louis Children's Hospital in Missouri.

I myself was stuck in Illinois until i was stable enought to be transported because of the c-section. I went to be with my baby on the 4th. She was so beautiful, but had so many tubes and wires in her it broke my heart. I stayed with her in the NICU for as long as they would let me.
The family came in from Illinois to see her and say prayers. From the moment I saw her I knew she was an Angel sent from Heaven.
The doctors had their doubts about her making the flight there. She did though and the doctors worked hard on keeping her stable they had to keep draining the fluid out.
On the 5th the doctors thought she was doing good enough to be taken out of her induced coma. But she didnt tollerate it on the 6th she was on the max of every medication and breathing machine. 9:30pm the night of the 6th was the last time i saw my baby girl alive. She may have been on machines and having tubes coming out of her but i still knew she was alive.
The only good thing that the doctors always made comments about was Kailey's heart. But it was working to hard the morning of the 7th. Her little heart couldn’t take all that it was given.
Kailey had a mild heart failure and her left lung collapsed.

With all the fluid that HYDROPS causes the doctors couldn’t drain enough to do much for her. They couldn’t get her lung to reinflate so they couldn’t resuscitate her.
Kailey passed away on December 7, 2004.
She beat the doctor’s expectations though. They didn’t think she would make the flight from Illinois to Missiouri. Our angel stayed on earth for 3 days and 12 hours.

We love her and miss her everyday not any day goes by that we don’t think of her...

I wish that HYDROPS FETALIS was a known illness AND that doctors knew more about what it does and how babies get it... Research needs to be done on this illness.
I know that my daughter isn’t the only baby that has had this illness... and won't be the last.


GOD'S ANGELS
God has a mighty army
Of Angels everywhere.
Some you cannot see,
Some, our daily lives they share.
All have been summoned here
For specific reasons.
Some are here for an extended time,
Others for shorter seasons.
Angels guide, teach, and protect
Or shape our lives some way.
No one, only God Himself,
Knows why Angels cannot stay.
The Lord's ways are far too big
For us to fathom why,
But in time, we'll see in clarity
Why Angels say goodbye.

"KAILEY'S SPECIAL PLACE"
The Lord has opened a special door,
Upon this sad, sad day.
Where little angels are keeping score,
As the other little angels play.
They have a new friend that has just arrived,
Kailey is her name.
They welcome her with open arms and
gleaming smiles,
As she joins the other ones in the games.
Sadly missed here an earth, Our grieving hearts
do cry.
We know that she is in a better place,
with angels in the sky....
(Written by Kailey's Great Uncle)
We love and miss you Kailey!!

ANGEL BABY
My precious angel baby
why did you have to leave?
I had so many hopes for you
Now all I do is grieve.
I hoped and wished and prayed for you
And thought my dreams had come true
But now you're gone, and life goes on
And I don't know what to do.
I've cried a river of tears
Enough to cause a flood
Some say that it was "for the best,"
But how could this be good?
I'm told that I must go on
To care for those on earth
But am I the only one who sees it?
The only one who knows your worth?
You were a part of me...
My body and my soul
I'll never know God's reasoning
His purpose, or His goal.
It's not for me to question
"Why me, dear Lord, Oh why?"
I'll just have to trust I'll see you
In the sweet by and by.
I'm told that I will see you
When my time on earth is through
And that one day I will hold you
And can whisper, "I love you."
My days on earth will seem so long
Until I meet you there
But until then, my angel baby
Please know how much I care.
I may have never held you in my arms
All nice and warm and tight
But I will hold you in my heart
And in my prayers each night.

Happiness keeps You Sweet,
Trials keep You Strong,
Sorrows keep You Human,
Failures keep You Humble,
Success keeps You Glowing,
But Only God keeps You Going!

KAILEY NICHOLE JACKSON
JONESBORO -- Kailey Nichole Jackson, four-day old daughter of Steven and Tia(Hale) Jackson, died at 11:22 a.m. Tuesday, December 7 2004, in the St. Louis Children's Hospital. Kailey was born December 3, 2004 in Marion.
She is survived by her parents, Steven and Tia Jackson of Jonesboro; one brother, Trenton Jackson of Jonesboro; her maternal grandparents, Renee and Gary Knight and Rick and Lisa Pulver, all of Anna, and Joe Hale of Xenia; her paternal grandparents, Charles and Stella Jackson of Cobden; six uncles, Ryan and Wyatt Pulver, both of Anna, Timmy, Brian and Jeff Jackson, all of Cobden, and Charlie Jackson of New Grand Chain and five aunts, Alexis Pulver and Natalie Knight, both of Anna, and Sara Jackson, Penny Alsip, and Jenny Evans, all of Cobden.
She was preceded in death by her cousin, Christopher Alsip and her great-grandparents. Services will be at 10:30 a.m. today in Ebenezer Hall Cemetery, with the Rev. Roger Glasco officiating. Visitations will be from 9 to 10 a.m. Friday at the Crain Funeral Home in Anna


This is a song that is dedicate to my daughter..Mommy LOVES YOU and MISSES YOU Baby Girl!!
Simple Plan
Meet You There
Now you're gone
I wonder why you left me here
I think about it on and on again
I know you're never coming back
But I hope that you can hear me
I'm waiting to hear from you
Until I do
You're gone away
I'm left alone
A part of me is gone
And I'm not moving on
So wait for me
I know the day will come
I'll meet you there
No matter where life takes me to
I'll meet you there
And even if I need you here
I'll meet you there
I wish I could have told you
The words I kept inside
But now I guess it's just too late
So many things remind me of you
I hope that you can hear me
I miss you
This is goodbye
One last time
And where I go you'll be there with me
Forever you'll be right here with me
I'll meet you there
No matter where life takes me
I'll meet you there
And even if I need you
I'll meet you there
Kailey's Other WebPage:
http://Kailey04.tripod.com

